ACT is the only organisation working nationally to achieve the best quality of life and care for all children and young people who have a life-limiting or life-threatening condition and their families.

ACT's Vision
To achieve the best quality of life and care for all children and young people with life-threatening or life-limiting conditions and their families


ACT's Mission
ACT seeks to influence and promote excellence and equity in the provision of care and support for children and young people with life-threatening or life-limiting conditions and their families by:

Campaigning for improved provision of children’s palliative care services
Working with professionals to support the delivery of the best care possible
Informing & empowering families to have a voice in the development of the services that affect them

Strategic Aims
ACT’s seeks to achieve the best quality of life and care for children and young people with life-limiting or life-threatening or conditions and their families.   In order to achieve this throughout the UK ACT aims to: 


Campaign with decision-makers for the development of integrated, equitable and sustainable children’s palliative care services
Lead the development of best practice in the delivery of children’s palliative care by working with health, social care and education professionals to produce resources and educational initiatives and develop and disseminate the evidence base of what works best.
Empower families, including young people, to have a voice in the development of children’s palliative care services and provide them with the information they need to access the best care and support.
Ensure that ACT as an organisation is adequately resourced and recognised to achieve its objectives.

Are you a parent or family member providing care for a child with a life-threatening or life-limiting condition?

Do you deliver or support children’s palliative care services for the under 25s?

Do you want to learn new skills to help support children and young people – but can’t afford the training?

National children’s palliative care charity ACT (Association for Children’s Palliative Care) has launched a new training grants programme to help families, carers and professionals working in the field to help enhance their skills, knowledge and competencies.

The ACT Children’s Palliative Care Training Grant Programme, funded by The True Colours Trust, aims to help support best practice and specialist knowledge in caring for children with life-limiting conditions by providing small one-off grants of up to £250 to individuals and agencies who wouldn’t otherwise be able to access specialist training.  We will also pay a maximum of £50 towards your travel for attending the event.

ACT will consider grant applications for training, events, conferences and seminars that meet the following criteria:

For professionals: Training that will help to share best practice and to enhance the knowledge, skills and competencies of those working in children’s palliative care. The training should also meet one or more of the standards of support and care outlined in the ACT Charter for Life-limited Children and their Families. See:

For parents, carers and close family members: We also want to fund training, conferences or events that will provide families with information or support that will help their child/children, increase their skills and confidence in caring for a child, or support their wider family.

ACT, Orchard House, Orchard Lane, Bristol, BS1 5DT
United Kingdom

Email ACT

Telephone ACT:     +44 (0) 117 922 1556

Fax ACT:              +44 (0) 117 930 4707

Mapping Project    +44 (0) 1248 600214 

Helpline:                0845 108 2201